Sunday: March 30, 2014

The Jewell family has had one busy week. Cooper had his eye doctor appointment Monday. We love his doctor! He was amazing with Cooper and told us he would forever be in his prayers. We didn't really find anything out that we didn't already know. However, we do have to take Cooper to UVA to see a neuro- ophthalmologist. The doctor wants us to start patching his good eye and see if we notice any vision from his poor eye. He told us he'd like us to try 2 hours a day. We got 10 minutes and it was nothing but a major melt-down!

I had a snow day Tuesday and Randy got off work early. We spent the morning at school, lunch eating Mexican, and afternoon relaxing at home.

Wednesday was our Chemo day. Cooper had PT/Speech/OT that morning. He of course loved the pool. He said two new words for us during speech: he pointed to the ceiling and said light. Then he made the "bak, bak" noise for a chicken. When we got to the hospital we had our usual "picnic" in our room: peanut butter and jelly sandwiches, grapes, and string cheese. Our Wednesday picnics have become something I look forward to each week and one of my new favorite memories. Chemo was hard. I hate seeing him go through this every week. Once he was accessed and they started his medicines, he slept. That afternoon he walked up the steps all on his own, not once, not twice, but TEN times! That was 150 stairs for that little boy. I bought him a trampoline and he loved jumping on it.

Thursday was a very scary day for us. Randy and I went to work as usual. I got a call saying he felt very warm, was extremely fussy, and short of breath. Randy rushed home to discover a 102 degree temperature. We knew that if his fever was 100.5 or greater we had a very short amount of time to get to the hospital. Randy called the doctor and he said to take him straight to Roanoke. He picked me up at school and we rushed there. They started an antibiotic that stays in the system for 24 hours and checked his blood. They were able to get his fever down to 99.1 degrees. They told us that if his blood levels came back 500 or below we would be admitted. After what seemed like forever, they told us his level was 2200 and we were free to go home! We were so thankful.

Cooper had a good day Friday. He worked hard for the therapist and was in a good mood. We also had a good weekend. He has been coughing a lot and running a low fever. He has been resting a lot more, which is probably what his body needs. We have reached the point of no-eating. It's so sad. He will take a bite of anything you give him, but then spits it out - a sure sign things aren't tasting right. However, through everything he stays so happy.

Our prayer for this week would be that Cooper is able to get over his cough and is able to eat something! Thanks to everyone who keeps him in your daily prayers.

Eating a pop tart at chick-fil-a after his eye appointment

 

He must have really wanted that peanut butter

Bath time in the sink!

 



Snow day at school with Mommy and Daddy

 



 

Working hard during therapy

Using the stairs during therapy

 



 

Cooper didn't care about the camera, he wanted in the pool!

 

In the waiting room waiting on Chemo

Cuddle time during Chemo

 



He loves this plunger!

 



 

Cooper was so proud of himself after climbing all those steps!

Going Up!

 



 

Getting his antibiotics to get his fever down

 

A lunch of Froot Loops

Eating PB and J sandwich and a banana after being released from the hospital

 



 

He loves books as much as Mommy

 

Getting some OT in during bath time: shaving cream!

 

This was so funny. Cooper watched himself (in the mirror) drink his entire juice cup!

 

Sweet Baby Boy

 

I love this: he feel asleep while "rocking" with Dad