Sunday, February 23, 2014

Sunday: February 23, 2014

We have had a very busy week. Cooper had two therapies on Monday, I had a doctor's appointment on Tuesday, Cooper had all three out-patient therapies on Wednesday, MRI on Thursday, and therapy on Friday. We were excited for a nice quiet weekend at home.

Cooper did great during his therapies, he has really enjoyed showing himself off. Daddy is ready to build a pool because Cooper has so much fun in it during therapy. We were finally able to make our donation to the PICU and PEDs floor at Roanoke on Wednesday. With the help of the school system and community, we had a truck load of blankets, clothes, socks, hats, mittens, stuffed animals, and cups. They were very happy to receive such an awesome gift. We would like to thank each of you who made a donation.

We stayed in the Ronald McDonald House Wednesday night. Cooper did not have a good night. We were late getting in so he was able to go right to sleep. However, around 1 a.m. he woke up. Randy and I took several turns sitting up with him. Finally, we were all back in our beds shortly after 4 a.m. He did wake in a good mood and was very patient while waiting to be taken back for his MRI. The results were what we expected. No growth of the tumor. That's great news. That tells us that the Chemo is at least not allowing it to grow anymore. We were hoping to see some shrinkage, but the doctor said that would have been very unlikely at this point. Several minutes into our visit we received news that has made me worry myself sick. The doctor said that Cooper has a chance of losing his vision in both eyes due to where the tumors are located. This is something glasses would not be able to fix due to the tumor being in his eye nerves. He has such a long road ahead and may obstacles to face. I don't want this to be another one. I don't want him to lose something else that he once had. We prayed very hard for Cooper to have vision in one eye and that prayer was answered. We are now praying that he will keep it! I'm asking for everyone to please send up extra prayers for him. Also, his blood counts are down. They are actually too low for him to have his next Chemo treatment. He has to have blood work done early Tuesday morning to see if they are up enough to go on with his treatment on Wednesday. I hate seeing him go through Chemo, but he needs it. So, we are also praying his counts are high enough for his treatment.

Cooper has had a great day today. We were able to get outside for a walk in this nice weather. He loved being outdoors. I love my weekends with this little guy!

Only part of the donations we took to the hospital


Mommy and Cooper playing in the playroom at the Ronald McDonald House
 


Cooper enjoying the fish
 

 
Patiently waiting for his MRI

 
Mommy and Cooper asleep after the MRI
 

Eating some Chicken and Fries at Chick-fil-a
 

 
How precious is this face?
 

And check out the Beefaroni Face!
 


How many tub toys are too many?
 

 
This is too funny. I asked Cooper to look at the camera and he made this face, shook his head, and said no. I wonder if that means I take too many pictures of him???

 
He heard a 4-wheeler coming up the road


Cooper was waving bye to the 4-wheeler
 

 
Playing outside


He is just too darn cute!
 



Finally! We have waited forever to do this. Cooper loved going for walks in his car. Today it was warm enough to spend a while outside. I pulled his car into the driveway and brought him out. As soon as he saw it he started pointing and yelling "car, car" and trying to get out of my arms. He was so excited, and so were Mommy and Daddy! Bringing back our favorite memories.
 


3 comments:

  1. At least the tumor hasn't grown any and hopefully in time it will shrink, and maybe miraculously disappear. Not only am I praying for him to keep his vision in his left eye, but that he will some in his right eye too. That was a wonderful donation that you all were able to make to the PIC at Roanoke. The generosity of the communities is awesome. I'm sure many little boys and girls will benefit from the donation. The pictures are awesome. Cooper may be getting tired of you taking so many pictures, but I don't know anyone that is tired of seeing them. This child is amazing. I'm so glad he was able to play outside some. I know how he loves the out doors. I hope that Cooper and you all will have a great week and that his blood count will be up and he can continue his treatments. Love, Hugs & Prayers

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  2. I am very happy to hear that the tumor hasn't grown any and so sorry about the possible news of loosing his vision in the left eye.. Praying for God to send a healing miracle for Cooper.. It was such a great donation from everyone; a blessing for others indeed!! I was so use to reading the blog everynight; I may forget Sundays sometimes but will always catch up!! Some sweet pic's !! Love and continued prayers from me and Hunter..

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  3. I am happy to hear he is making progress, I always enjoy his pics he is a miraculous lil boy, as always I will continue to pray for him and you all.

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