Friday: January 3, 2014

Today has been a very hard day. Cooper woke every 10-15 minutes during the night because he couldn't get comfortable. I stayed in the chair next to his bed until 1:00 a.m. when I decided to try to sleep. At 1:30 I got up to change his diaper and he began throwing up. He threw his feeding tube up again and was extremely weak. The nurses helped me clean him up and he was able to enjoy a bath. After getting new sheets, blankets, and pillows he was ready for bed again. He drank about one ounce of juice on his own before going to sleep. Luckily the doctor allowed us not give him another feeding tube and let him try to rest for the rest of the night. It was a little after 2 when he was finally asleep. From then on he slept pretty well.

We went for an x-ray at 7 this morning to check his digestive system. They then decided it was time to access his port. We went to the treatment and realized they didn't put the numbing lotion on him. They said they needed to go ahead and they would just use cold spray. The nurse put the needle in, but didn't get blood return. This meant they needed to do it again. I was NOT happy with the way this was going. They pulled the needle out and tried a second time. This time it went in where it was suppose to. I felt so bad holding little Cooper down and seeing him go through all this pain. Then at 9:30 we went for an ultrasound. The doctor said sometimes a cyst can develop at the end of a shunt. After 2 hours we got back to our room.  The results on both the x-ray and ultrasound came back normal.

He missed OT due to us being gone for the ultrasound. It was now time for speech. Since he hadn't eaten or had anything to drink, she said she'd feed him. This actually worked out well because he ate half a yogurt, a few bites of soup, and drank 8 ounces of juice. OT decided to team up with PT for the afternoon session. They had a successful hour with him. He was in a good mood and worked well for them. This session ended at 2, which was suppose to be his Chemo time. However, that didn't start until 4:30! Luckily, he slept through it and woke in a good mood.

Cooper ate very little dinner but was able to drink another 8 ounces of juice. We played in the floor and went for a walk. He enjoyed his bath as usual and drank 8 ounces of milk. It's 9:00 p.m. and he is having trouble getting to sleep. He is hooked to IV fluids so every time he rolls over or moves his machine beeps and the nurse has to come in. Hopefully he will have a restful night.

Mommy's Fav of the Day: He loves to chew on the string 

 

View from our room

 

Cooper standing up on his own

 

Chemo can really wear you out!