We have had ups and downs today. Daddy was up with Cooper since midnight last night. He is hooked to IV fluids and his port is very positional, meaning that every time he moves it causes the needle to move. This causes his machine to go off (beep) and the nurses have to come in and adjust things, usually waking Cooper. This occurred about every 1/2 hour last night.
Cooper did have an amazing morning. He was in a good mood and did great during all therapies. He started early with his first one (OT) at 8. Then he had speech at 9. She feed him since he hadn't had breakfast. He did eat a small amount but didn't drink anything. He then worked hard during his 10:00 PT session. He did a lot of standing during this session.
He finished therapy at 11 and was ready for a nap. He actually slept until 4:45 but was up several times during his nap. When he woke he was very fussy and acted as though he was in pain. We tried everything to comfort him, but was unsuccessful. The nurses said we needed to try feeding him dinner since he hadn't eaten or drank much today. That caused nothing but a major screaming spell. Since he loves to take a bath we decided to try that. It worked for about 10 minutes. He ate a little ice cream and played but was ready to get out real quick. After the bath we tried a wagon ride. He actually enjoyed that. We walked around the entire hospital, spending lots of time on the 5th floor-our favorite! He feel asleep on Daddy's lap just before it was time to start getting ready for bed. We let him sleep for a while, then woke him to do our nightly routine: bath, story, milk, brush teeth, in the bed! He enjoyed this bath and drank 8 ounces of milk. We thought he would be ready for bed, but NO! I guess we shouldn't have let him nap. He did not want to go to sleep. He didn't fall asleep until almost 10, we put him down at 8:30!
We are praying that Cooper will eat and drink more. If not he will have to have the feeding tube again and we do not want that. We also are hoping that Cooper will sleep through the night. He's still hooked to IV fluids so we are still dealing with the beeping machine! Also, he is due for medicine at 2 a.m. and a sodium check (blood draw) at 4 a.m. I'm really worried about tonight. Mommy and Daddy are beyond exhausted at this point. Tomorrow is our "day out." We really want to take Cooper out, but we are afraid he won't get to go due to him needing more fluids. If he eats breakfast and drinks a milk, we can go!
Mommy's Fav of the Day: Only because I love cuddle time!
Wagon Ride with a few of his friends
Playing ball with Daddy
I sure hope Cooper rests well tonight. Hopefully you all will. I'm sure you all are totally exhausted beyond words! Maybe Cooper will eat and drink well in the morning and you all can get out for at least a little while. That would make him feel better, I'm sure. Poor little fella, I just wish he didn't have to go through this. I wish NO child had to. Hang in there, a couple more weeks and you're homeward bound! Love, Hugs & Prayers
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