Sunday: January 5, 2014

I don't even know where to start! We put Cooper down at 8:30 last night and he finally fell asleep around 10:00. At 10:20 his pump was beeping, then again at 10:55. This woke him both times. He was up at midnight, and the nurse had to come in 4 times (I think) between then and 2:30. At 2:30 he got his medicine, waking him up again! He was able to sleep until 3:30 when they did blood work. Between  3:30 and 4:30 the nurse was in our room about every 15 minutes dealing with his pump. Finally, I told myself that if it beeped one more time I was requesting them to take him off his fluids for a few hours so we could sleep. At 5:00 it beeped, but only to let us know it was finished pumping! Thank goodness. When the nurse came in to unhook him, Cooper got sick and threw up his milk. We were told he shouldn't have thrown up milk that he drank 9 hours ago. He was then able to sleep until 9:00. He still just wanted to be held, wouldn't eat or drink, and we couldn't get him to play.

He napped most of the morning and woke after lunch in good mood. We were able to get him to eat 1/2 a popsicle. We thought this would be a good time to try out the new playroom. He was able to enjoy it for a short while before deciding he was ready to go. We were almost back to our room when he threw up the popsicle. This was very concerning for the nurses. After he played in the bath and got his medicines, he was ready for another nap. He was able to rest without being interrupted for a long while. He woke in a good mood, ate 3 bites of a PB & J and some more popsicle. He was very happy playing the floor alone before taking a short walk. He ate some coffee ice cream and drank 15 sips of decaf coffee. We were told, at this point, this is fine. We need him eating and drinking whatever makes him happy. For some reason he only wants coffee or coffee flavored stuff. He has lost a little weight. Chemo can change your taste buds and foods that he once liked, he may no longer. We were told this is a good time to introduce him to new foods that have strong tastes, even spicy items are good ideas. We were also told that lots of kids on Chemo like lemonade and it's fine for him to drink DECAF coffee if that's what he wants. I'm so against this! We are going to try lemonade tomorrow!

After the horrible night last night, dealing with the pump, we found out Cooper actually received to many fluids causing his sodium to drop to 125. The lowest it should be (here on their scale) is 134. This meant he had to have his sodium checked every 3 hours until they got it where it needed to be. The next time they checked it, it was 127, then 133, and finally 137. We are still very concerned with him being so upset, acting as though he is in pain, and getting sick. We met with the a few doctors today. His PEDs doctor did an exam and said both ears have a little fluid and one is red, but not to the point of being treated. She offered pain meds, but Randy and I both feel this is not something we want unless we know what the pain is. We feel as though if we give him pain meds we are only covering up the unknown, so we decided against that. His Chemo doctor did start him on two new medicines: a new one for nausea and the other for tingling in his limbs. Both of these are side effects from Chemo, but we aren't sure if this is what's bothering him. We are seeing a GI doctor tomorrow to see if he can offer us any new ideas.

Cooper went to bed easily and in a happy mood. Praying he rest well and we get some answers tomorrow!

Cooper playing the new playroom

 



 

Cooper enjoying the company of puppies during blood work

It was a rough morning

 



 

Wagon Ride

 

Mommy's Fav of the Day: He is so cute and happy in this picture!

 

He loves the fishing pole because water gets trapped in it and when he hits it on the side of the tub water flies EVERYWHERE!!! He thinks it's funny!

 

After he got his hair washed