Today didn't go like we thought it was going to. There were lots of obstacles in our path today that made our day quit challenging. We left the house at 9:00. Cooper had 3 hours of therapy evaluations, then Chemo, then a doctors appointment. We finally left Roanoke going on 7:00.
We learned that insurance will only pay for 30 combined sessions of PT and OT, which was hard to hear because he will be needing a lot more than that. He also didn't get his Chemo today because it was so late in the day when we finally got the medicine. This time he was due only the pill. Our insurance would not allow it to be filled at the pharmacy next to the hospital. They said it needed to be filled at a specialty pharmacy, but thanks to the WONDERFUL pharmacist, insurance did an over-ride for this time only. Cooper is also on a steroid that requires three prescriptions: regular dosage, stress dosage, and emergency dosage. Insurance wouldn't cover the emergency dosage because it was an injection. If anyone can explain insurance companies to us, please feel free to do so.
Also, Cooper was due blood work. They didn't access his port because of the current Chemo pill. After sticking him several times and not getting any blood return, they decided "it wasn't that important this time for him to receive blood work." I hate seeing him get stuck, especially when they get nowhere with it!
We got home so late that Cooper had his meds, took his bath, drank his milk, had story time, and is in the bed. We are hoping for a restful night for all of us.
Cooper says it's okay to have suckers for breakfast!
Mommy's Fav of the Day: He is using that left hand to crawl!!!
Checking out the bunny in the office!
Sorry about the insurance ordeal. You pay a fortune for it to be able to use it, then it won't pay. And it's probably going to get worse! Sad, but true. Poor little guy, I know he has to be worn out, as well as you all. Prayers for a peaceful and restful night for all 3 of you. And of course, Cooper can have a sucker for breakfast! He's been through enough that he deserves it! It's wonderful that he's using that left hand more. Hopefully that will strengthen it and he'll be able to use it real good. Love, Hugs & Prayers
ReplyDeleteJust a thought on the OT/PT thing. I don't know about your state, but here kids under 3 are eligible for Early Intervention services (a division of Head Start for younger kids I believe) who are evaluated as developmentally delayed for a variety of reasons. I'm not entirely sure how it works, but I've known and worked with several families that have received these services. They provide free services as long as there is an evaluated need and many times the therapists come to the home to provide those services. You may check with the special needs coordinator in your school district to see if that is an option once insurance runs out. Hope it works out. I hate dealing with insurance companies too! They make no sense...even as a provider!
ReplyDeleteOk, not to keep bothering you :) I did a quick Early Intervention WV search and got routed to this site (you may have already seen it) that talks about state funding to supplement private insurance for children under 21 with medical issues:
ReplyDeletehttp://www.wvdhhr.org/cshcn/
Good Luck!
I am so sorry that you all had such a day. Insurance definitely stinks. It seems like the people that have insurance and try to do well for themselves are always the people that pay the price. Those that don't have anything get the help they need. I'm still praying for you all and Cooper. You shouldn't have to fight to help your child get well. It's so not fair. God bless you Jessica and Randy. You are awesome parents and God will continue taking care of your baby.
ReplyDeleteYou guys hang in there. Hopefully our insurance company will be dropped after this year. It is terrible.
ReplyDelete